still sacredEMMA’S JOURNEYSupport Emma

THE JOURNAL · EMMA

The questions I want to take into the room.

A practical starting point for a specialist conversation.

Understanding the finding

Where is the cavernoma? What do the latest scans show? Is there evidence of a recent bleed? Which symptoms might be related, and what else should be investigated?

Understanding the choices

What are the benefits and risks of monitoring, medicines and surgery in my case? If surgery is considered, what functions could be affected? What experience does the team have with this location?

Understanding the next step

Who is responsible for follow-up? When should I expect contact? What should I do if symptoms change? Could I have the plan in writing? Bring your own questions and adapt these to your clinician’s advice.

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